The Roller Coaster Continues

Sunday, October 11, 2009
Kennedy is doing great - well great according to our standards for Kennedy. She is still talking and babbling a lot. She does not really smile or babble in response to something or someone, but non the less she is happy as pigs in mud. Life however has become more complicated in the last three or four weeks. Kennedy's throwing up is in full swing and it is driving me absolutely nutty!!! We have changed formulas to a prescription formula and it has not helped one bit. It has become so bad that we are no longer able to drive in the car with her unless someone is sitting int he back seat with her suction machine. It sounds crazy, but whenever she is sat up it seems to compress her belly and make her throw up (our basic diagnosis - it is better then any diagnosis we have ever received). This then creates more problems because I don't have the luxury of having someone with me at all times to chofer Kennedy and I around.

This is a huge problem for me!!!! Throwing up leads to aspiration. Aspiration leads to pneumonia. Pneumonia leads to hospitalization. Hospitalization could lead to death! I am sick and tired of Kennedy throwing up! Not to mention it takes a lot out of Kennedy and I don't think it is fair. I just can't believe no one can figure out why Kennedy constantly throws up every time she is moved, pushes to go to the bathroom, burps, or her belly becomes compressed. It is just plain unacceptable that I can't get an answer.

Brian and I have decided to go elsewhere for a second opinion at Children's Hospital - Los Angeles. Hopefully it does not take us to long to get in to see a new Gastrointerologist, Pulmonologist, and Neurologist. I am looking for second opinions from the GI and Neurologist, however, I just absolutely hate Kennedy Pulmonologist so I am looking for a new one!