The Peanut Gallery

Wednesday, September 10, 2008

My Little Case Study

Saturday, August 30, 2008 - Wednesday, September 3, 2008
The first five days at Loma Linda Children's Hospital Kennedy was put through every kind of test humanly possible. The doctors ran so many tests and took so much blood from her that she had to get another blood transfusion (her fourth). I don't think she has any of her original blood in her body. Thank god to all the people that donate blood. Brian and I wanted Kennedy to use out own blood, however, I was not a match and Brian was. Unfortunately, in order to give blood for Kennedy to use it took over a week for processing so Brian was unable to donate to Kennedy either.

Kennedy had all the best doctors on her team. I never knew that some of these doctors even existed. As of now Kennedy has the following doctors working on her case;
Neonatal Pediatrician (baby doctor)
Cardiologist (heart doctor)
Radiologist (I don't know how to describe a radiologist - hahahaha)
Optometrist (eye doctor)
Endocrinologist (hormone doctor)
Nefrologist (kidney doctor)
Geneticist (genetics doctor)
Neurologist (brain doctor)
Respritory Therapist (doctor who controls and monitors her vent)
Physical Therapist

As of right the two possible prognosis' are: a metabolic issue (inborn error of metabolism) or a neurological issue. It is a waiting game. Brian and I are keeping are fingers crossed for the most positive news. We are expecting the worse but praying for the best. I think we can handle anything that life throws our way, we just want to make sure Kennedy can breath and communicate on her own. She is the strongest person I know. I don't think that I would be able to hold on as long as she has. She is a fighter and she is not going to be overlooked.