More Seizures

Monday, March 16, 2009
We are back to having seizures!! We were one day post Phenobarbital and Kennedy's seizures have started back up. Geeze......Why is it that the worst drug out their (Phenobarb) seems to be the only drug that is controlling her seizures? I called the Neurologist for some advice and received a very frustrating 3 part response - try to increase the dose of Keppra, stop Keppra and put her back on Phenobarb, or take her to the ER. Back to the ER - for what. They don't even know what to do with her at the ER. They just look at us with blank stares like we are a medical anomaly (which I guess we are) but who wants to be looked at like that - it is not very comforting. We have two options when going to the ER - drugs or inpatient. They will either drug her up and send us home or admitt us for more tests which will result in NO answers.....HMMMM!!!!

Can March 31st come already????