The Peanut Gallery

Thursday, April 23, 2009

A New Career

Thursday, April 23, 2008
Well I have decided to make the big move…..With a heavy heart I will be saying good bye to Park West. My new job will be Kennedy’s full time caregiver and advocate. My life has been like a circus act since coming back to work and juggling the special needs of Kennedy….this “act” has finally posed too much for me to handle. I am stretching myself way to thin and I needed to make a change. I have been getting this gut feeling (which I don’t often get) that I needed to alter my life plans drastically and be home with Kennedy as her full time caregiver. With the uncertain future for Kennedy I just didn’t want to miss another day with her.

The diesel company next store to Park West has a marquee below their company sign – each month they put up a new quote for all to see while driving up and down Peck Road . My Ah Ha moment was reading the quote of the month, “Lost time is never found again”. So that’s it….God is leading me to be home with my daughter, so that’s what I am going to do. I have another calling in life…to spread understanding and awareness to the world regarding the life of having a special needs child. I know when we first begun this journey on August 13th I was starving for information and to find families going through what we were going through – if Kennedy’s story could help families out in similar situations to ours and let them know they are not alone, then my job is done. Life is going to be rough “financially” but we will figure it out – we always do.

Thank you for all your love, support, and prayers J I tell Kennedy every night what a lucky girl she is – most people have never even met her, however, she is in their thoughts and prayers every day.


Christina said...

Very sacrificial choice, but I am sure it is not one you will regret, Stephanie! Are you still waiting for the results about Krabbe disease? Just want you to know that I am following your story and care about your little "peanut"!

Jamie said...

I hope everything works out for you Stephanie. Our prayers our with you, Brian and Kennedy. Have fun with your new career.

ThatsMe!! said...

A decision your will never regret, I can promise you that... Keeping all of you in my thoughts and prayers
PS also wanted to mention that you may want to call the social security office back (if you haven't already)and let them know whats going on with Kennedy's last test she may get approved for SSI quicker without so much red tape ..